
I started this blog because Ethan’s life is worth writing about. Not the “inspirational soundbite” version—the real version. The one made up of routines, tiny wins, hard days, brilliant smiles, and the quiet ways he tells us exactly who he is.
This is a space where I can share Ethan’s world as we live it: what helps, what doesn’t, what makes him laugh, what makes him comfortable, and what makes him feel safe. I also want to change the way people think about disability and complex needs—because Ethan isn’t a tragedy, and he isn’t a headline. He’s Ethan. And he has a life that is full, important, and deeply human.



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